BIG UPDATES!!

A couple of weeks ago I wrote a detailed blog about everything that has been going on with Aveline, When you Just Don’t Have the Words. In the blog I stated that Children’s hospital would not be able to get us in until summer 2018 after we had already transferred. We were exploring other avenues with our pediatrician to get us into UW as they had a shorter wait time… So that is a little bit of the recap, for more information please read the blog I linked above.

First off we want to say thank you to each and every one of you who read the blog, and lifted our family up in your prayers. Two days later UW called, we played phone tag for a couple of days, but finally got to talk. That morning they did a phone interview with us and said they would discuss with their triage team and most likely schedule to do a swallow study, but they would be in touch. A few hours later Children’s hospital called and said they would be able to change up the schedule and get Aveline in Nov. 7 to see the pediatric gi specialist, speech language pathologist and dietician. They said they would schedule our follow up with the feeding team sometime in December or January. So thank you, God has answered our prayers to get her seen and get this ball rolling. There was insurance matters I had to take care of, but all of that is in order now.

The Coast Guard did end up categorizing her as special needs, so our transfer location will be affected by this, and we will be going to a larger city somewhere, we will likely not know where until February or March sometime, but we are prayerful and hopeful that God will put us right where he wants and needs us. We have researched the teams and specialists that we will need in different cities we are allowed to be transferred to, and feel confident that we will be in good hands.

Also, Aveline has now been assessed by physical therapy and there are a couple of issues we are working on. We have some great exercise activities we are doing to help strengthen her and encourage coordination. There is still some question about potential nerve damage from her traumatic birth. So we are prayerful that we will come out of our appointment this Tuesday with more answers!

On the moving front that has had us busy as well. Awhile back I wrote a blog about putting our house on the market. You can read that HERE. A few days after I posted that blog we got an offer on the house. If you have ever sold a home there are negotiations, then the inspection and more negotiations, fixing things, an appraisal, and assuming all of that goes well, then you wait for your close date which ours is set for Nov. 30. So on top of everything we have been doing to care for Aveline, we have been going through the process of being under contract for the house. We found an apartment to rent until we leave next summer, the house appraised for the correct amount this week, so now we have been packing. We take the keys to our new place Nov. 13!

November is going to be slightly chaotic with Dr. Appointments 3 hours away, packing, moving, therapies, and cleaning the house for the buyers. Oh and don’t forget our girls will both be turning 1.5 and 3.5 this month, and Thanksgiving. If I survive this month you really can call me Diana Prince (for those of you who don’t get the reference, that is Wonder Woman’s real name… you know because I am quite the fan!). We will continue to keep you in the loop on everything happening.

Thank you again for your prayers for Aveline and our family, as well as those who prayed for us to find a place to live. Please continue your prayers for answers this week with the specialists, and that we don’t have any hiccups with the house selling. We love you and appreciate all of the love and support you have been praying into our family. It takes a village as they say, and without our hope in Christ and our prayer warriors we would be lost right now.

4 thoughts on “BIG UPDATES!!

  1. Thanks for sharing your family’s journey! We know firsthand some of the struggles a family faces with special needs kids. Children’s is an AMAZING facility. Praying you come.out of Tuesday with answers and the peace of God! Love your family dearly!!!

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  2. So very glad to hear the updates on your sweet girl. Just wanted to let you know that after 12.5 years of dealing with visits and surgeries at both American Family Children’s Hospital in Madison and in Milwaukee, they are both great. Our guy has had wonderful doctors, nurses and other staff members at both. Not to mention excellent care. All that to say if you find yourself having to take her to Madison, be at peace with it.

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